World Downs Syndrome Day

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The 21st March is World Downs Syndrome day. I’ve truly enjoyed watching some heart-warming videos and memes around the place, emphasising the beauty of Downs Syndrome.

I’ve been blessed to have an Uncle who has Downs. He’s just turned 50!

I guess, like a lot of people, it would be easy to talk about the serendipitous joys being associated with Downs. Their simplistic beauty. Their smiles. Small mercies and blessings.

What I don’t think we celebrate is those who care for these amazing people.

I think of my grandparents, who have dedicated their lives to enriching not just my Uncles life, but the lives of many with disabilities. Certainly, looking after a child with Downs is more than a full time job – especially when the parent has other children, their spouses and themselves to look after. The hours waiting in hospital waiting rooms. The anxious waits during surgery. The painstaking task of educating these precious children. Being on ‘first name’ terms with a multitude of medical specialists. The dedication when, yet another night is disturbed with the sound of your child choking, the panic, the rush to emergency.

As much as it’s a delight to be with and watch my Uncle, I can honestly say I’ve learned the most from my Grandparents about Downs. I’ve learned from them about treating EVERYONE with love, dignity and respect, regardless of who they are. They’ve taught me to be love the uncontrollable boy with autism. Love the precious Downs girl who just wants to show off her new pink hair ribbon.

I was at the park this morning with my children. While I was there, a Downs boy of about three was there, with his Grandmother. I had a brief chat to her about how beautiful and lively her lovely Grandson was. In glowing terms, she gushed over her precious boy, and in a closing remark told me “I can’t believe that so many of these precious children are aborted”.

I’m not here to jot my thoughts on abortion, save for that each of these precious children are a gift. A gift that not every family might be able to accept, but a precious gift never the less.

I’m proud of this gift that my Grandparents have given our family – the gift of loving everyone, regardless of their ability.

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26 comments

  1. Karen

    Mum was a special school teacher from when I was about 6 I think, and having grown up around the school and the kids I have to say some of my favourite kids and the ones I still remember most fondly were the Downie kids.

    Also, an excellent point about the people who care not only for people with down syndrome but with any other such challenges… I’ve said for years it’s not a job for those who teach or work in other support roles, it’s a calling, and even having grown up with these kids in my life I know I’d never be strong enough and have great respect for those who do.

  2. AlyZen Moonshadow

    Nice post. I don’t know anyone personally who has Down Syndrome, but I watch “American Horror Story – Coven” and am constantly amazed by the acting prowess of Jamie Brewer, who has Downs. Having an extra chromosome makes them special, not special needs.

  3. cherylfoston

    Thank you, for reading my blog. It is greatly appreciated! Your blog is wonderful and your grandparents really showed you what true love means. You are so blessed and may God continue to bless you and allow you to be a blessing to others.

  4. kcwriter2000

    My most favorite job of my life was working at Battle Monument in Baltimore, MD. The students there were awesome. I would rather spend my work day around folks that appreciate your help. God bless all those who need extra patience. πŸ˜€

  5. Marie Abanga

    When I read such posts, I am often left in tears. Not so much of sorrow, but of awe. Yes, when you have in your family a member with any of those issues ( my only brother suddenly became semi-cabbage like), you know what care, joy and pain is involved. I am stronger now than before and my son’s ‘flirting’ with Vitiligo pails in comparison. Thanks for sharing this Pete

  6. sdneeve1

    What an inspiring post. It reminds me of the saying, “treat others as you would like to be treated yourself.” And thanks for dropping by my small community. πŸ™‚

  7. suzjones

    I work in the disability sector. I have learned to look past the disabilities of these men and women and see them. Many of them are just wonderful and make me smile.

  8. Pingback: Pockets of Humanity | vidinsinbrisbane
  9. Pingback: The Planned Parenthood Videos and the Downs girl I met in Fiji | vidinsinbrisbane

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